Jaime M's Update

On Wednesday, April 29th 2009, I featured one of my very first Lymie friends, Jaime M.



Jaime M is now a 33 year old mother of two wonderful children in Ohio. She was so sick a couple of years ago that her husband had to carry her into her Mom's house for Christmas dinner. She couldn't walk, talk or even hold a pen to write her name. She was constantly throwing up. Jaime got to the point where she wrote goodbye letters to her children and husband. She knew that if things didn't change, she would be dead within the month.

Jaime looked death in the eyes. Jaime said, "By all means I'm not scared to die, to be in heaven with no more pain and suffering and surrounded in pure love sounds pretty nice. But I keep fighting the fight for my kids. They truly have saved my life." After Jaime got so bad, she decided she wasn't going out like that and she quit treatment. She crashed even more. For a couple of months, she got even sicker (which she didn't think was even possible). However, eventually her body started to even itself out.

Jaime's gone from over 60 symptoms to about 20. She hates to admit to people that she stopped treatment and now feels a little better because she thinks that's a choice people have ot make for themselves. She plans on doing some natural stuff, but introducing it very slowly and gently. She also plans to do a lot of detoxing because she thinks it's important.

Pain is her worst symptom. She feels like her sacrum is splitting in half. She lays on tennis balls to release some of the pressure points, it feels like something is wrapped around her spine so much that she can feel it all the way through her stomach. Jaime is still very nauseated and after her cycles (you ladies know what I mean!) got so bad, that her obgyn put her on the pill. She hopes that by telling others some of her embarrassing symptoms that she might just be able to help others out. To be quite blunt, her menstrual cycle was so heavy that she would use both super plus tampons and a super pad and have to change them both within the hour. However, since her OB put her on the pill, she's basically had a period for the past 3 months. So now she's considering a hysterectomy. She's so scared to take this step and she's had so many surgeries.

Aside from the obvious prayer for their health, Jaime would like prayers for a few other things as well. She wants prayers for her children that they know how much Jaime loves them and how much God loves them. Jaime also is in terrible need of support from her family and friends. She has very little support and is being terribly hurt and terrible things are being said about her (Jaime told me the things, but I don't want to repeat them here on the blog to protect her). For the past 12 years, no matter how sick Jaime was, she went to every family function and though she couldn't stomach to eat, she'd help cook and clean up the messes. She also has to deal with the fact that other family members don't help at all.

Jaime also needs help with a financial break through. She thinks it would benefit her so much if they could just leave their home. Her neighbors and mean and nasty and her children can't even play in the front yard. However the market is crashing and they are upside down in the house that they can't afford to leave.

Molly's Update

May 29th 2009, I featured Molly from Michigan. Molly is now 52 years old and I recently got in touch with her to find out how she has been doing. She began Rifing for Babeiosis. Molly thought she didn't have it, but her doctor felt that it couldn't hurt since it had been taking so long for her to recover. Rifing stirred up another monster and she herxed like crazy. She's been rifing for a year, but she's had some interruptions in getting truly aggressive. Molly is up to two Babs sessions per week. Molly's pain levels have improved as well as her overall health.


Last year, Molly lost two very important people in her life. It has really affected how her family feels. Then in early June, Molly's husband was diagnosed with stage IV Neuro Endocrine Cancer. This is a very aggressive cancer. Joe's Pet Scan showed that the cancer has metastasized to his entire body. This year has been very stressful and Molly's health as suffered.

Joe is responding very well to Chemotherapy and they haven't ruled out some alternative treatments. Molly says that while it may sound weird, she thinks he's going to be around for a while. They are praying for a miracle and aren't ruling anything out. Joe constantly displays a positive and friendly attitude which has kept Molly strong as well. Molly says, "He is an amazing man."

Please pray that Molly makes good decisions about her health so she can be well enough to care for her husband of 30 years. Please pray that if it is God's will that Joe be completely healed as well as his comfort during this horrendous journey.


When I first posted about Molly, I also posted this youtube video.

Lisa D's Update

Remember Lisa D? Recently I reconnected with Lisa to find out how things were going.

Aside from Lyme Disease, Lisa's mother in law was re-diagnosed with a brain tumor. She spent most of the year with her. She took a turn for the worse and at the end of October she passed away. Please keep Lisa in your thoughts and prayers during this time.

At the end of 2009, Lisa and her husband saw their Lyme doctor. Her husband is doing much better. Lisa has also improved, but they are both still on their Lyme medications for at least another 6 months. Lisa has now been on them for a year straight. Lisa's doctor believes there is something else going on, but will test for that later.

Lisa wants everyone to know that she is praying for everyone that has Lyme, especially the young children that have been denied their childhood. She prays that God will make this a better year for all. In our healing and in our sickness, she says, "We need for the world to stop and look around, see those in pain and suffering and think of them."

It was my hope when I started this blog that we could reach out to others with Lyme Disease to show an outpouring of love and prayer. Please continue to pray for Lisa and her family.

Johnny Update

Remember Johnny?

I recently reconnected with him to find out how he's been doing. Johnny no longer feels as if he's dying all the time. His dizziness has also improved. He has had so many things that have cleared up, but he is no where near like he was prior to getting Lyme Disease.

John's sleeping patterns are still not normal. He still has neurological damage which includes muscle twitching, spasms and vibrations. These things aren't near as severe as they were a year ago, but they are still there. Something that is extremely frustrating for John is that his brain function is horrible. He has difficulty completing sentences and spelling without mistakes.

Overall, he experiences functionality and is able to walk without pain. Currently, John is on a 5 week drug holiday. He is hoping for the best with no relapse. He desires your prayers for improvement. He believes a positive attitude is key to recovery, but that is easier said than done.

If you would like to submit a prayer for John, please leave a comment for him to read.

Candice Update

Remember Candice? Candice is doing rather poorly right now. She needs urgent prayers. Her Gastrointestinal Tract is a complete mess. She can only eat 5 foods and she is still in pain when she eats those. As you can imagine it gets quite boring eating the same 5 foods. So if anyone has suggestions on the following: Asparagus, Broccoli, Pears, Beans (e.g. Lentils), and sweet potato (but not Yams).

She is seeing a new doctor, but the treatments aren't helping yet and it has proven to be a hefty financial burden. Candice had applied for SSI and was hoping it would help with the financial things, but she received a letter recently that they denied her based on old medical records. These were all from a doctor that does not believe in Chronic Lyme Disease.

Candice still suffers from dizziness, profound fatigue, shortness of breath, malabsorption, irregular heart beat, head pressure and pain in her chest, left arm, upper back, lung and sinuses. With Frequent Gallbladder attacks, her weight is still not approving as is at a dismal 100 pounds at 5'7. Her white blood cells (eosinophils) keep rising and her blood pressure falls to 70/50. Candice has severe brain fog including occasional episodes where she is unable to read at all or process any form of information.

All of this leaves Candice feeling stressed, debilitated and sad. She had an appointment with Dr. H's ND (which will be 1400 dollars) on Tuesday. She is hoping that something will come of that appointment. She knows she has some big decisions to make, but doesn't know who to turn to or what kinds of treatment to take a stab at since her body can't handle what it's given.

*** I believe her new treatment plan includes using Tindamax ***